Since the discovery that Narcolepsy is most likely an Autoimmune Disease, I know I have been combing the web for information on new developments and articles discussing this topic.
I found a link provided by Medical Planet, that offers a free download book (pdf) called "Narcolepsy and Hypersomnia (Lung Biology in Health and Disease)". One of the editors is Emmanuel Mignot, so I am thinking that it might be a good read. Here is the description of the book from the blog page at Medical Planet,
"This is the first and only guide to discuss narcolepsy as an autoimmune disease. Compiled by an international group of more than 40 authors, this reference book supplies an engaging and comprehensive review of the major topics and key issues associated with narcolepsy and hypersomnia. Spanning the latest advances in the field, this source covers current diagnostic procedures, genetic developments, explorations of animal models, new definitions and criteria, and improved epidemiological surveys to reflect the explosion of research in this evolving science."
The book appears to be published in December of 2006. I have downloaded the book but I have not yet had a chance to read it yet. It has 736 pages!! You can download it HERE.
With the download, there are some other files that come with it that appear to be links to other services and possibly material that the website might be trying to sell, but you don't have to open them unless you want to. My computer did not detect any virus or malware with this file download, but of course, make sure you check it on your computer, just to be safe!
I hope that this will be useful to some of you, and the website the book came from looks pretty interesting too, although this was my first visit.
If you get a chance to check it out, please leave a comment!
Go Easy!
Ja
9 comments:
Thanks for posting this, I'm awaiting an analysis of sleep tests (overnight + MSLT) and it seems kind of obvious to me that I'm narcoleptic. Your blog is helping me to put together that puzzle. I'll check out the book.
I♥blogs,
I am glad that you are finding some info here to help. I wish you the best with your tests, and don't ever feel like you are alone! There are a lot of us out here with Narcolepsy and lots of support available!
Via con Dios,
Ja
I have narcolepsy and it gets me into a lot of trouble. I never have any energy at all, and I fight sleep contantly often without success. When I manage to stay awake I am wishing that I were asleep. I could easily sleep 24 hours a day. I am glad I found your blog. I am trying to figure out what to do with myself. This is not fun.
Anonymous,
I can really relate to your comment. Thanks for visiting and I sometimes can sleep all day and night too! It kind of goes in cycles though; sometimes I can only sleep about 4 hours at a time, and only during the day!? It is such a wierd illness. No, it is so not fun!! I hate it so much. I don't know how, but I do know that we have to hang on and have hope. Some days I feel like I have no hope at all. But it usually comes back, without any major changes. All I can say is that I do pray a lot. I hope you are doing well, and I also hope to hear from you again.
Via con Dios,
Ja
Heya i am for the first time here. I came across this board and I find It truly useful & it helped me
out much. I hope to give something back and aid others like you helped me.
Greetings! Very useful advice within this post! It is the little changes which will make
the greatest changes. Thanks for sharing!
Hi! I know this is kinda off topic however , I'd figured I'd ask.
Would you be interested in exchanging links or maybe guest authoring a blog post or
vice-versa? My site goes over a lot of the same topics as yours and I feel we could greatly benefit from each other.
If you might be interested feel free to send me an email.
I look forward to hearing from you! Superb blog by the way!
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