October 28, 2009

This Sleepy Woman Hasn't Had Too Many Adventures Lately!

Hola everyone reading!

I haven't written in awhile, and I am sorry for that, if anyone was wanting to read here. My dog died Aug 10th, and it has been a little harder than I thought it would be. He was 14 years old, but very young acting! In the last year he got Diabetes and it was really hard on him. He also went blind (overnight) this year, but adapted so well, and did a great job finding his own way anywhere.

I loved him like family, and after having him for 14yrs, he was my little brother. He died in his sleep at the vet. They initially had to give him lots of phenobarbatal because he was having seisures that wouldn't stop. By the next day, he still was having them in his sleep and died.

I want to write here again, I have been reading a lot, but it was just hard to write anything without losing it. As many of you already know, stress really messes with your Narcolepsy too! I am hanging in there, and I hope that all of you are too. For any of you that pray, please pray for my family and the grief process. We are doing ok, but without God, I dont even want to think about where I would be!

Thanks Mucho!!

This is my dog Leo. :)



July 29, 2009

Alternative Treatments for Narcolepsy? Be Careful! Part B

Hola all.

My last post was about these websites that seem to be popping up all over the place and tout alternative therapies for treating, healing and yes even "eradicating" Narcolepsy altogether.

I started talking about one of these treatments called "Corsatax". Their website claims,

"
Unlike other Narcolepsy products which are slow or ineffective, Corsatax has the unique ability to provide long term support in a relatively short time through an easy one-a-day pill regimen. In recent years there has been an increasing interest by medical researchers, practitioners and also the general public in natural plants and herbs as sources of medicine. All pharmaceutical companies are now finally admitting the fact that plants and herbs are by nature endowed with substances that have incredibly powerful healing powers."

I found their statement very general and not really informative about this one-a-day pill regimen. They list absolutely no links to studies performed on their product. In the ingredients section, they do list the "properties" of each herb used, but site no authority or mention where the heck they got the info.

As mentioned i my last post, I wrote them via web form at their site to request more info on and studies that may have been perform, and expressed my interest in trying the product. I have not at this point received any reply to my request. Surprise!

And here is where it becomes a real hot mess;

By doing a simple (ok, a little more than simple) search on some phrases they use on their website, this "company" seems to have more than 100 other websites almost completely identical to the "Corsatax" site. yep, there's:


Ongrotax: A unique Gonorrhea product
Sintatex: A unique Tinnitus product.
Lipratax: A unique Oral Leukoplakia product.
Meslarax: A unique Inclusion BodyMyositis product.
Glocatax: A unique Glaucoma product.
Dermatax: A unique Dermatomyositis product.
Gemlarax: A unique Polymyalgia Rheumatica product.
Nebralex: A unique Boils product.
Vomorax: A unique Cyclic Vomiting Syndrome product.
Kidnatrex: A unique Renal Failure product.
Myorex: A unique Cluster Headache product.
Cervorax: A unique Cervical Spine product.
Gravitax: A unique Myasthenia Gravis product.
Vegarax: A unique Graves' Disease product.

And about a kagillion more...(do these people have any conscience?) Do they just sit around making up names....?!?!?

Each website is almost complete identical other than the name of the product, and some of the ingredients. It's is a damn shame.

The "company", Botanical Sources, is supposedly in Italy, and I imagine it has a front yard full of unicorns, and rainbows with pots of gold at the ends. It may as well, because that address is nonexistent, or perhaps and PO box of some sort.

I am sorry to make this post so long, but there is more...Here is the HOT HOT mess section.

At the website "Rip-off Report", a site where consumers can publish complaints about purchases or fraudulent activity, There are a few interesting complaints about the lovely "Botanical Sources" co. Click here to read from the website, or here is a snippet of the complaints below;

From the site, a customer writes:
"I ordered an herbal product called Voltarax from this company not knowing they were located in Italy.My order took almost a month to reach me. When it did arrive I noticed it was mailed from Pakistan. The packaging does indicate that it was made in Pakistan. Had I known upfront that I was ordering a supplement that was made in and mailed from Pakistan I would not have ordred.
Botanical Sources is using a company CCnow as a 'retailer' in the US to process payment information. Buyer beware."

And...
"This web site preys on people looking for natural cataract relieve. It almost seems like a legitimate site until you look for a telephone number to ask questions and there is none. Their address in Italy does not exist. The web page does have a false area to submit your name, e-mail address and phone number stating that they will get back to you immediately. Of course they never will. It claims of natural herbs from India known to heal cataracts. The frauds call their product Secarx."


Well, I guess I am the bearer of bad news. I wish that they were legit. I knew they weren't, as most of you did too. We have to be careful! Always check with other before wasting your hard earned bucks on crap like this. I just wish I could figure out how to take them down!!!!!


What do you all think about this crappalicious crap!!!????? Let me know, maybe we can get the word out, or form a coalition to get these meanies together and .....and pinch them really hard ...or something....maybe make them take one of our natural remedies...called Crappheadtax. Kinda catchy, huh...

:)

July 19, 2009

Alternative Treatments for Narcolepsy? Be Careful! Part Uno

(This is kind of a long post, but I hope it may be of great use to some of you out there! I certainly am interested in knowing all I can:)

I don't know anyone that wouldn't be ecstatic to find a natural way to make Narcolepsy go away or even something that would help reduce Narcolepsy's symptoms. I know I am one of those willing to try any safe natural treatment. Hey, If it doesn't work for me, no real loss, right? At least it would be a learning experience. And, as the saying goes, what works for some, may not work for others. (I think that is a saying...but oops, if it is not)


Those who know me know I am a researcher. I look for news everyday, regarding new information about Narcolepsy, and read way to much, most of which is written in a language that I understand, at best, only a bit, due to the medical terminology. (Why didn't I become a doctor or geneticist...:)


So with that being, I have always noticed some "natural cures" that pop up on the web from time to time claiming that Narcolepsy is over, done been cured, that is, with the help of their well studied, miraculous mixture of herbs, that completely kick Narcolepsy in the butt! Yeah, right...


I have tried to find information about the companies that have these websites that are strangely similar in many ways. I have tried to find out if anyone has tried any of them....can't find a soul, except for the testimonials of those on the products website. So, as much as I had ever wanted to just try them, my conscience just cannot allow me to. Below I gathered some info from each of these sites for your viewing. I also have written to two of them, which I have below as well.
My personal comments are in
RED so it doesn't get confusing. Here it tis...oh ps. I didn't list the website addresses. A quick Google, and you'll find them fast if needed.

Treatment name:
Corsatax

Claim from their website:
"Unlike other Narcolepsy products which are slow or ineffective, Corsatax has the unique ability to provide long term support in a relatively short time through an easy one-a-day pill regimen. In recent years there has been an increasing interest by medical researchers, practitioners and also the general public in natural plants and herbs as sources of medicine. All pharmaceutical companies are now finally admitting the fact that plants and herbs are by nature endowed with substances that have incredibly powerful healing powers."...uh....this statement actually has nothing to do with their unique product! duh.

Cost: 60 tabs=65.00 90 tabs=95.00

Guarantee:
"After placing your order, if you believe for any reason that Corsatax is not suitable for you or you do not find it meeting your health expectations, you have nothing to worry about. All you have to do is to send us back the unused portion (or the empty bottles if you have used the whole product) and all amount that you have paid us would be refunded immediately without any delay. It is completely up to you if you want to give a reason as you will not be asked for any. This guarantee is valid for 60 days from the date of purchase, thus allowing enough time for delivery to your door and to experience results."

Company:
Botanical Sources Via Canova 24, Suite # NR 320 Roma 00186 Italy Ok, they have a guarantee, sound to good to be true? Me thinks so... They provide NO studies done on the product, but they do provide links to studies about natural plants being useful in medicine, as if they think the average person doesn't know that that has already been known since the beginning of time. errrrr... Since they provide no evidence or real info about their product, I used their contact form to write them this letter:

I wrote:

"Hello, I am interested in learning more about your treatment. Are there any specific studies that have been done using Corsatax? I am eager to read these type of studies, published or private. I look forward to hearing from you. Thank You."

I will update with any additional info I receive. I hope they get back with me with great proof, I really do. But my realistic mind tells me they won't. I hope I am wrong. Until then, I would advise anyone not to jump into this one. You may never get your money back and they list no proof of their product working, with the exception of their overly generic testimonials. Darn!
UPDATE: As of April 15, 2010, I have not heard anything from this company...Surprise!

If anyone out there has tried this product, I would love love love, did I mention, Love to hear from you. I have always wanted just to try it and see what happens, but I just don't have the money to take that chance.

Oh, I have broken this post down, so my next post will be about another company similiar to this one, with another product aimed toward knocking Narcolepsy on it's proverbial butt. :) Thanks everyone for reading my posts. I love ya all!

June 26, 2009

Genetics Traits, and the Most Genetically Annotated Human on Earth!

Click here for one of the most interesting articles on how genetic traits can be analyzed. This author of the article has had 5094 traits analyzed! A world record, and an amazing story.

May 26, 2009

Narcolepsy - poetry

I woke up this morning
"2:43" said the blazing red lights
About four hours before my alarm
Usually goes off and slaps me awake...

I woke up this morning
Sat straight up in my bed
All bright-eyed and bushy-tailed like they say,
Rubbed my crunchy eyes and stared out my window
And into the slow blackness of night...

Still and cold and deathly quiet
Nothing moved, not even the trees,
Not even the clouds,
It was as if time had stopped, and I
Was the only one left behind, and it felt like

"The ship leaves in five minutes"
And I had slept through it all-- the megaphones, the shouts,
Even the sirens in the distance,
I missed the exodus, the passage
Again...

But when I woke up this morning
I put on my suede slippers,
You know them, the fuzzy ones that makes me shoot sparks
And I shuffled off into the dark kitchen
Wondering if I had lost something there
Like cold pizza from the night before...

Casting shadows from the refrigerator
I was hungry but did not eat
I was thirsty but did not drink
I was tired but did not sleep
Because somewhere I swore I heard you laugh...

At least I thought I heard you laugh,
Like fat stormy raindrops on my window pane,
Like blue-white snowflakes pushing February away,
Like a bamboo windchime with its wires tangled...

I woke up this morning
Wishing I could fall back to sleep,
Because my dream made no sense
And there was no one there I could tell it to...

©2006-2009 @rapidograph

May 24, 2009

Wakey Wakey! People with Narcolepsy

Hey peeps.

I just got a email from a friend, Chris"Toph4er" reminding me about one of the greatest forums ever. He does a hella job over there at "People with Narcolepsy" so I wanted to mention it here. It may be a forum that you have never checked out yet. The people over there are friendly and love new folks stopping by.

If you like to do the forum thing, this is a great forum to check out. Click here to go check it!

I hope everyone is doing well. And how about that proof about Narcolepsy being an autoimmune disorder! I was really excited to read that, but now I am just crazy to know what that really means for us. Anyone havve any ideas?

April 10, 2009

Does Narcolepsy Make You Post to Your Blog Less??

Hola!

I have really been trying to write in this blog on a regular basis. I am guessing that it is quite apparent that I have not been doing such a fantastic job at it :(

My little cutie dog got sick, and it has been tough to deal with, but I am sure It might be most difficult for him. He went completed blind literally overnight. When we got to the vet explained it could be a illness caused SARD where pet go blind rapidly, without know why. Then, that same week he was diagnosed with Diabetes. After that, all sign are pointing to another additional diagnosis of Cushings disease.

My poor little guys has really been through some difficult times lately. If anyone gets a moment, would you please say a prayer for him? Thank you in advance!!

February 15, 2009

Helloooo! Check Out This Great Narcolepsy Blog Site!

Good day everyone! I remember a couple of months ago looking at a site that different people had posted some things in a blog type format, about having Narcolepsy. I just checked It out again, and it has a lot more entries from many different perspectives! On the site it states;

"If you've got something to say about sleep disorders
you can say it here. Prose, poetry, photography;
whatever form of expression suits you
best (within reason).
Please email your contribution
to (email is listed at the actual site)
with the
subject line "We are not lazy". Please include

your name (or a pseudonym), age and location."

Even If you don't want to add to this really cool blog, make sure you at least go check them out!! It is really nice to be able to read about how other people feel, and what they think about Narcolepsy. Just CLICK HERE or up at the title of this entry to check out the blog called "We are not lazy".

Hope you all had a great weekend!




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