tag:blogger.com,1999:blog-194449072024-02-19T19:57:01.921-05:00The Adventures of a Sleepy WomanThis blog is about Narcolepsy, and how it effects one's life everyday. Yes, I am the sleepy woman, but I still have adventures every now and then...and when I don't, there is plenty of things to write about in this world:)Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.comBlogger40125tag:blogger.com,1999:blog-19444907.post-44657544051628409332019-05-31T17:20:00.000-04:002019-05-31T17:20:08.839-04:00Can You Hear Me Now?<div dir="ltr" style="text-align: left;" trbidi="on">
Hey everybody! Holla if you hear me!<br />
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Time for a revival up in here!<br />
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Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com2tag:blogger.com,1999:blog-19444907.post-47985591139136586092015-03-04T18:37:00.000-05:002017-04-10T03:48:44.260-04:00Dreams, Reality, and Knowing the Difference Between Them When You Have Narcolepsy<div dir="ltr" style="text-align: left;" trbidi="on">
<b>People with Narcolepsy...I have a question for you.</b><br />
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Are there memories that you have of events that seem <b>crystal clear</b> in your mind, but something either happened where you realized that that event didn't really occur, or others may tell you that they don't ever remember it occurring? <br />
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I remember coming home from work one night, and it was very late, probably around midnight. I remember looking out the window, and seeing a blue and orange spiral object moving across the sky. It almost looked like DNA strands, twirling through the pitch black sky. <b> It was beautiful! </b> Here's the thing..<b>.I only started to remember seeing it, years after it happened </b>and it didn't seem like it shocked me.<br />
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I didn't remember it being a UFO. I remembered it being something that was supposed to occur, similar to how we see eclipses occurring infrequently in time. Like these events that are unusual, but we know when they are going to happen, and we know what they are when they do.<br />
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That's how I remember this DNA strandy-ish kind of thing. Every time I think of it, I try to find info about what it could have been, as if maybe I am just missing something. Then my rational mind speaks to me and says something like,<b> "What in the heck are you thinking, you crazy Narcoleptic!"</b>.<br />
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<span style="color: #0b5394;"><i><b>And now for the point of the post...</b></i></span><br />
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I knew that Narcolepsy can effect my memory, I mean I can say something to someone and 5 minutes later (or less) repeat the exact same thing, with NO memory of previously saying it at all. If I had a dollar for every memory gap that I have in my life, I would have...uh...probably a lot of dollars, but I, of course, am not sure...<br />
<b><br />So here comes the interesting stuff.</b> I know I am not alone, but there are specific studies done regarding <span style="color: #0b5394;"><b>delusional confusion of dreaming and reality</b></span> in Narcolepsy. <b>Did I actually dream about that DNA in the sky?</b> I swear I saw it, and if I didn't know better, I wouldn't accept that it could have been a dream, but I do know better. Damn. It was so cool, and a little part of me still thinks that one day I will find some obscure info about it happening, and I will say<b> HA HA! I win! </b><br />
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Until then, if you are interested you can check out the links below for some info about this phenomenon. <br />
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<b><a href="http://www.ncbi.nlm.nih.gov/pubmed/24501437" target="_blank"><u><span style="font-size: small;"><span style="color: #0b5394;">Delusional confusion of dreaming and reality in narcolepsy.</span></span></u></a></b></div>
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<a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4160044/" target="_blank"><b><u><span style="color: #b45f06;"><span style="color: #0b5394; font-size: small;">Dreams, reality and memory: confabulations in lucid dreamers implicate reality-monitoring dysfunction in dream consciousness</span></span></u></b></a></div>
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/18755253" target="_blank"><u><span style="color: #b45f06;"><b><span style="color: #0b5394; font-size: small;">Story-like organization of REM-dreams in patients with narcolepsy-cataplexy.</span></b></span></u></a></div>
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/18755253" target="_blank"><u><span style="color: #0b5394;"></span></u></a></h3>
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/18755253" target="_blank"><u><span style="color: #b45f06;"><i><b><span style="color: #0b5394; font-size: small;"><br /></span></b></i></span></u></a></div>
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<b><span style="font-size: large;"><span style="color: #6aa84f;"><i><span style="color: #741b47;">P.S.</span><span style="color: #0b5394;"> This blog entry, is in </span><span style="color: #0b5394;"><u>no way</u></span><span style="color: #0b5394;"> trying to imply that Unicorns are just a delusion or a figment of imagination. </span><span style="color: #0b5394;"><u>Unicorns are indeed real</u></span><span style="color: #0b5394;">, and I have seen them on my balcony many times, during both day and night. Unicorns, however, cannot be photographed...so...</span></i></span></span><i><span style="color: #b45f06;"><span style="font-size: small;"><br /></span></span></i></b></div>
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<i><b><span style="font-size: small;"><span style="color: #b45f06;"> </span></span></b></i></div>
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Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com1tag:blogger.com,1999:blog-19444907.post-76779668406718764592014-02-03T01:58:00.000-05:002021-02-12T00:45:16.873-05:00Narcolepy, Truth and Consequences with a Side of Depression.<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-size: small;"><b><span style="font-weight: normal;">Today I've been thinking about what to write about here, and I have a few things I'd like to share. I used to try to read, and research everything possible regarding Narcolepsy. New treatments, New discoveries and anything new about Narcolepsy was on mind more than anything. </span></b></span></div>
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<span style="font-size: small;"><b><span style="font-weight: normal;">This blog started out as a way to share what I learned along the way. So, today I would like to share some things that I didn't really understand before. They didn't require research, they required time; time to grow, and learn more about this Narcolepsy, just by living with it.</span></b></span></div>
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<span style="font-size: small;"><b><span style="font-weight: normal;"><br />First what I know is this; even though I have been diagnosed for about 11 years, I still sometimes get to a place where I feel like people that are close to me disregard my illness or act like it is not a big deal. It seems as if they expect things from me that are things that I may not be able to do. </span></b></span></div>
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<span style="font-size: small;"><b><span style="font-weight: normal;"> Instead of being straight forward and reminding them in a direct and honest way that I can't do whatever it is at that time that they ask of me, I take the selfish route and begin my passive aggressive routine. I except the task and complain to myself about how mad I am that they would even ask me do whatever it is in the first place. Then comes the pity "celebration" about how no one cares about me, they don't believe my illness is real, they don't appreciate anything I do...and so on. They even will ask me to drive somewhere when I feel sleepy!! They don't care!! And then like magical clockwork depression show up to make it worse...Thanks depression!</span></b></span></div>
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<span style="font-size: small;"><b><span style="font-weight: normal;"><br />Here's what know is true;<b> I am the one in control of my actions</b>. If I know that I am not able to do what is required at that time, it is my duty to tell them that. Yes, they know I have Narcolepsy, but unless I let them know how I feel, they will never know. If I just do what they ask of me, when I don't feel that I can, or if it is not safe for me to drive,<b> I am the only one to blame if I do it anyway, without letting them know that I shouldn't do it.</b></span></b></span></div>
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<span style="font-size: small;"><b><span style="font-weight: normal;"><br /><b>So, in a nutshell...tell people how you feel.</b> Do the best that you can, and if you can't do something, let them know that you can't. It is so very simple, yet sometimes we make everything so much more difficult! Truth is, that there may be people the really don't care about how you feel. But in my situation, most of the time, those type of thoughts are created only by me, and my actions. </span></b></span></div>
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<span style="font-size: small;"> I do have a lot of people that care greatly about me. There are some that don't and yes, it hurts me to the core at times. I am still so grateful for those that do care. I am blessed. Sometimes we need to check ourselves! We need to give people more information and more chances. <b>We really have absolutely nothing to lose.</b></span></div>
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Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com2tag:blogger.com,1999:blog-19444907.post-50538128310029509842010-07-05T20:07:00.001-04:002010-07-07T02:23:04.561-04:00How Xyrem Probably Works-Good Info from a Smart Girl!<div style="color: #274e13;">I took Xyrem for Narcolepsy about 5 yrs ago. I took it for I think about 6 months, although I may be wrong because those months are quite cloudy. Other than the face swelling, major anxiety, bloody hangnails, head thrashing, wanting to die and not being able to breathe through my nose, it was a pretty good experience...<b><span style="color: #b45f06;">or not</span>. </b></div><div style="color: #274e13;"><br />
</div><div style="color: #274e13;">Over at the<a href="http://www.zombieinstitute.net/"><span style="color: #b45f06;"> Zombie Research Institute</span></a>, one of my favorite websites, Heidi L. has some great information about millions of things having to do with Narcolepsy and so much more. </div><div style="color: #274e13;"><br />
</div><span style="color: #274e13;">You can read her section entitled </span><a href="http://zombieinstitute.blogspot.com/2009/09/how-xyrem-probably-works.html" style="color: #274e13;">"How Xyrem Probably Works"</a><span style="color: #274e13;"> </span><a href="http://zombieinstitute.blogspot.com/2009/09/how-xyrem-probably-works.html" style="color: #274e13;">here</a><span style="color: #274e13;"> and it is most interesting. She does some </span><b style="color: #b45f06;">serious</b><span style="color: #274e13;"> research, and all of her stuff over there is so worth taking the time to read. So go read it. Save your brain from Zombietude. </span><br />
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<div style="text-align: center;"><span style="font-size: large;"><b style="color: #b45f06;">In other very important news:</b></span></div><div style="text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLOeFtyfJXhKtRwy543RYACu12qqnjFhf-8Uhhzl-i_tTjaWzZkeKi61gydQtl913digfaw0_ua5Hf3C3tshGIeigeOwtOYx3-7s3sfodVP7TW_pvCtX3Htq_bAwXqx5FR-pnJ/s1600/6-30-2010.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLOeFtyfJXhKtRwy543RYACu12qqnjFhf-8Uhhzl-i_tTjaWzZkeKi61gydQtl913digfaw0_ua5Hf3C3tshGIeigeOwtOYx3-7s3sfodVP7TW_pvCtX3Htq_bAwXqx5FR-pnJ/s320/6-30-2010.jpg" width="320" /><b style="color: #b45f06;"></b> </a></div><div style="text-align: center;"><br />
</div><div style="color: #b45f06; text-align: center;"><b>Patchy and Pudgy, the pigeons that </b></div><div style="color: #b45f06; text-align: center;"><b>live on my balcony had babies! </b></div><div style="color: #b45f06; text-align: center;"><b>They are so ugly that they are cute!! </b></div><div style="text-align: center;"><b style="color: #b45f06;">They are so tiny!</b><span style="color: #b45f06;"> </span><b style="color: #b45f06;">Don't you want to just squeeze them!!</b></div><h3 class="post-title entry-title"><br />
</h3>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com20tag:blogger.com,1999:blog-19444907.post-76680359806665476352010-06-24T18:55:00.001-04:002010-06-24T18:56:11.952-04:00New Journal Article - Narcolepsy Treatments...Very InterestingHola everyone!<br />
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While perusing the curehunter.com database, I found a new article to be published this July, written by Stanford's own Christian Guilleminault, Mia Zaharna, and Alex Dimitriu. <br />
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The reasons that I find it <b>sooo</b> interesting is that it describes Narcolepsy as a <b>neurodegenerative disorder</b>, instead of the usually described neurological disorder. Also, there are some new treatment options that they mention that I had not heard of yet connected to Narcolepsy. The abstract states:<br />
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<div style="color: #b45f06;"><i>"For each of these treatments, we evaluate risks versus benefits of treatment, and proposed pharmacologic mechanisms of action. We conclude with a review of new treatment approaches, including thyrotropin-releasing hormone (TRH), histamine agonists, immunotherapy and hypocretin replacement therapies."</i></div><br />
Have any of you heard of thyrotropin-releasing hormone (TRH) therapy?<br />
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<b style="color: #b45f06;">You can access the abstract by clicking <a href="http://www.curehunter.com/public/pubmed20426704.do">here</a>.</b> <b>Please</b> let me know if you have any insight into this abstract or any comments would be appreciated. It seems to me that it is a pretty important step in introducing some optional treatments for Narcolepsy. <br />
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And by the way, it is just me, or is it a new thing to describe Narcolepsy as a "neurodegenerative" disorder?</b> <br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPInv1JvQ_LfZt7JqnRo4nnvC9MVAnaoE0UTqdCTXe_azKZtgEoxQLz_H71IFq20f2XpberMp6Z8pWg4eVV_rtqc4i8y3mVGBhLel-OEgOvoDpr7Epq3S7jkggHedZKHWnW7YB/s1600/jackykenny.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="156" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPInv1JvQ_LfZt7JqnRo4nnvC9MVAnaoE0UTqdCTXe_azKZtgEoxQLz_H71IFq20f2XpberMp6Z8pWg4eVV_rtqc4i8y3mVGBhLel-OEgOvoDpr7Epq3S7jkggHedZKHWnW7YB/s200/jackykenny.jpg" width="200" /></a></div><div class="separator" style="clear: both; color: #b45f06; text-align: center;">Ok, the dogs have nothing really </div><div class="separator" style="clear: both; color: #b45f06; text-align: center;">to do with Narcolepsy, but I love them! </div><div class="separator" style="clear: both; text-align: center;"><span style="color: #b45f06;">This is Jack and Kenny my sister's dogs. :)</span></div>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com1tag:blogger.com,1999:blog-19444907.post-84702342416049450642010-05-26T16:24:00.006-04:002010-05-26T16:54:45.508-04:00Depression in Narcolepsy: High Probability<div style="color: black;"><span style="font-size: normal;">Hola everyone! I have been looking for more and more info regarding Narcolepsy and Depression. It seems from what people are searching for, this is a popular search, and so I am trying to find more interesting resources to give. Narcolepsy and Depression, to me go hand in hand, and I think that most people with Narcolepsy already know this, right? But it is interesting to find studies that give us percentages and figures. Well, at least it is kind of interesting to me:)</span></div><div style="color: black;"><br />
</div><div style="color: black;"><span style="font-size: normal;">Here is a link to a study done at Lesley College way ba</span><span style="font-size: normal;">ck in 1996. <i> </i>I<i> </i>do, however, think that it is quite relevant today<span style="background-color: white;">.</span></span><span style="font-size: normal;"><span style="background-color: black; color: orange;"><span style="background-color: white;"> </span></span><span style="background-color: white; color: black;"> <a href="http://www.websciences.org/cftemplate/NAPS/archives/indiv.cfm?ID=19960293" style="color: black;">Please click here</a> to read it, or you can read the abstract below.</span></span></div><span style="font-size: normal;"><br />
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<div style="color: #783f04;"><span style="font-size: normal;"><b>Depression in narcolepsy: concomitant or constituent?</b></span><br />
<span style="font-size: normal;">LINDSLEY G, CRAWFORD B Sleep Research 1996; 25: 279. Lesley College and Quintiles/Benefit Research </span><br />
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<span style="font-size: normal;"><b>Abstract:</b></span><br />
<span style="font-size: normal;">According to recent studies, the comorbidity rate of narcolepsy and depression is estimated to be between 30-52%, as compared with a depression prevalence rate of 8.1% in the general population. Our current study provides further support of the significantly elevated comorbidity rate of narcolepsy and depression, and extends these findings. Subjects were 22 men and 44 women between the ages of 17 and 76 (mean=49ñ15.24) who completed a survey intended to assess the financial burden of narcolepsy. Estimated age of narcolepsy symptom onset was 20 yoñ10.64. The mean age of diagnosis was 34 yo ñ 11.49 years, with a mean lag of 14ñ11.53 years from estimated year of onset. According to the subjects' retrospective reports, 46% carried an accurate diagnosis of depression prior to their diagnosis of narcolepsy. Strikingly, 56% of the sample continued to carry this diagnosis during this past year. There was also a high comorbidity with diagnoses of anxiety. 32% carried this diagnosis prior to identification of narcolepsy, which increased to a rate of 35% within the past year. Overall rate of moderate to severe mood disturbance was 58% of the sample pre-narcolepsy diagnosis, which stayed essentially the same, 57%, during the past year.</span><br />
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<span style="font-size: normal;">Looked at separately, the five subjects in the sample < 25 yo had a lag of 0-5 years from onset to diagnosis. The data showed essentially the same trends with respect to associated diagnoses of depression and severity of mood disturbance, except that anxiety frequency increased rather then remained the same during the past year.</span><br />
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<span style="font-size: normal;">With respect to co-relationships among potentially relevant variables, severity of depression was independent of reported severity of EDS, cataplexy, disruption of school or work life, and medication. As graphed below for the current year data, however, there was a striking relationship between severity of depressed mood and presence/absence of anxiety diagnoses, with anxiety diagnoses increasing as depressed mood increased. Severity of depression also had a similar relationship with difficulty focusing and concentrating (cognitive disturbance).</span><br />
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<span style="font-size: normal;"><b>In conclusion:</b> (1) The probability of depression in association with narcolepsy is very high; (2) Formal diagnoses of depression are significantly related to diagnoses of anxiety; (3) Severity of depressed mood appears also to be related to degree of cognitive disturbance; (4) Depression increased rather than decreased across the life span in these subjects whereas anxiety increased in our small sample of young people but decreased moderately from prediagnosis to the current year in the total sample; and (5) that there was no obvious relationship between subjectively reported severity of depressed mood and severity of EDS or cataplexy, degree of disruption of school or work life, or type of medication. These data reinforce how critical it is to address affective disturbance as well as the primary symptoms of narcolepsy when treating narcoleptic patients. In addition, the high comorbidity rate of depression with narcolepsy, even when EDS and cataplexy are more or less under control, raise the question of whether depression is actually a constituent rather than merely a concomitant of narcolepsy.</span><br />
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<span style="font-size: normal;">Research supported in part by Cephalon, Inc. </span></div><span style="font-size: normal;">------</span><br />
<span style="font-size: normal;"><span style="color: #38761d;">Interesting?</span> When research is supported by drug companies, I usually am a bit skeptical, but this study isn't surprising to me, nor does it seem unlikely. What do you think about it? Leave a comment if you like, I would love to hear your thoughts on this.</span><br />
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<span style="font-size: normal;">Until next time,</span><br />
<span style="font-size: normal;">Via Con Dios,</span><br />
<span style="font-size: normal;">Ja:)</span>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com5tag:blogger.com,1999:blog-19444907.post-66468779294277132442010-04-10T18:31:00.007-04:002010-05-26T16:45:45.216-04:00Narcolepsy and History...Doctors Are Not Always the Smartest People...<span style="font-size: small;">I have recently had the opportunity to read some medical journals and reviews about Narcolepsy dating back to the late 1800's. I realize that we know so much more in today's world, but damn!<br />
There is absolutely no doubt that medicine in the 1800's and early 1900's was frequently scary as hell, just take a look <a href="http://blisstree.com/feel/healthbolt-historic-vintage-drug-ads/" target="_blank">here</a> and the so scary, I could pee my pants selections <a href="http://www.bonkersinstitute.org/medicineshow.html" target="_blank">here</a>, at the "Dr. Bonkers Institute", to get the picture.But back to Narcolepsy...</span><br />
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<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">I was perusing the 1897 book entitled,<i> "Sleep: its physiology, pathology, hygiene, and psychology." </i></span><span class="result-small" style="font-size: small;"><i>by Maria Mikhailovna Manaseina</i> and not only did I vomit a little while reading, but It so sadly reminded me of the attitudes of so many people during those times, and how scary it is to think that there are probably some people that actually have similar attitudes and beliefs today. Below is a selection from this old piece of doo doo, "medical" book...</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b><br />
</b></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-size: small;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzmyl1GKME3eMq29Dh_-XMFh69p40nancUYkuVX5zIFtmuxWeylXqQ-ugFvI1hJBOs3QuWrbozWYShfjHD7LNDEUrOTA6D19hk_yLf_kdEIm6GMemfCkdrF-BhuzcVjqU0kvFq/s1600/historynarc.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzmyl1GKME3eMq29Dh_-XMFh69p40nancUYkuVX5zIFtmuxWeylXqQ-ugFvI1hJBOs3QuWrbozWYShfjHD7LNDEUrOTA6D19hk_yLf_kdEIm6GMemfCkdrF-BhuzcVjqU0kvFq/s320/historynarc.jpg" /></a></b></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;"><br />
</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span class="result-small" style="font-size: small;"><b><i style="color: #b45f06;">Oh no she didn't!</i></b><span style="color: #b45f06;"> </span> Ok... it's 1897...we didn't know much then...blah blah blah...HELL NO! I don't care what year it was, she actually used the word "always". Read it again please...She says people with Narcolepsy always come from lower and least developed classes or from families with "nervous or mental disease". That is not a medical statement, that is a stereotypical, stupid statement of idiocy. Man, all I can say is that I am so very thankful that she was not my doctor! Thank you Jesus! </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span class="result-small" style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span class="result-small" style="font-size: small;">You too, can also read this mind numbing "medical" book online for free by clicking <a href="http://openlibrary.org/a/OL2553658A/Maria_Mikhailovna_Manaseina" target="_blank">here</a>. There are so many statements in this book that are grossly racist and just plain nuts. But sadly, it is history.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span class="result-small" style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span class="result-small" style="font-size: small;">I am a believer in knowing the truth about history and learning from it as well, but sometimes, well, actually, a lot of the time, it really is a hard pill to swallow. So many throughout history suffered and fought for freedom, and were treated in ways that we could never imagine. <span style="color: #e69138;"> </span><span style="color: #b45f06;">We've got to honor those who suffered and paid the price for our freedom today, and pray for those that still suffer unimaginable circumstances even today. </span></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span class="result-small" style="font-size: small;"><b><br />
</b></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span class="result-small" style="font-size: small;">Medical issues are just one piece of the pie. All I can say is that I feel like one of the most blessed people in the world. </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span class="result-small" style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">From all I can find, </span><span class="result-small" style="font-size: small;">Maria Mikhailovna Manaseina was a</span><span style="font-size: small;"> noted Russian physician and scientist that studied sleep. If she were here today, I would have to tell her to <b><i style="color: #b45f06;">kiss my Narcoleptic ass!!!</i></b></span><b><span style="color: #b45f06; font-size: small;"> </span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">History lesson concluded.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b><br />
</b></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span class="result-small" style="font-size: small;"><b> </b></span><b> </b></div>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com4tag:blogger.com,1999:blog-19444907.post-3083023507713971342010-04-07T16:44:00.008-04:002010-05-26T16:47:12.208-04:00Narcolepsy as an Autoimmune Disease<span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhASQwPH5aVvI8191M7NAt45qWTZm_REGSnqNDbS99AwcoqfkIxCK2TODn0w24fedEau2MwfICw16t6AdjvVV6B9etl_Q-nB_Snu2K6UV3P5ANMqRsymEwuQW_P37OMqQBRL3CJ/s1600/rman4942l.jpg" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img alt="" border="0" id="BLOGGER_PHOTO_ID_5457510672368765026" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhASQwPH5aVvI8191M7NAt45qWTZm_REGSnqNDbS99AwcoqfkIxCK2TODn0w24fedEau2MwfICw16t6AdjvVV6B9etl_Q-nB_Snu2K6UV3P5ANMqRsymEwuQW_P37OMqQBRL3CJ/s200/rman4942l.jpg" style="cursor: pointer; display: block; height: 175px; margin: 0px auto 10px; text-align: center; width: 200px;" /></a></span><br />
<span style="font-family: arial; font-size: small;">Since the discovery that Narcolepsy is most likely an Autoimmune Disease, I know I have been combing the web for information on new developments and articles discussing this topic. </span><span style="font-family: arial; font-size: large;"><br />
<br />
</span><span style="font-family: arial; font-size: small;">I found a link provided by Medical Planet, that offers a free download book (pdf) called "Narcolepsy and Hypersomnia (Lung Biology in Health and Disease)". One of the editors is Emmanuel Mignot, so I am thinking that it might be a good read. Here is the description of the book from the blog page at Medical Planet, </span><span style="font-family: arial; font-size: small;"><br />
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</span><span style="color: #ff6600; font-family: arial; font-size: small; font-style: italic; font-weight: bold;">"This is the first and only guide to discuss narcolepsy as an autoimmune disease. Compiled by an international group of more than 40 authors, this reference book supplies an engaging and comprehensive review of the major topics and key issues associated with narcolepsy and hypersomnia. Spanning the latest advances in the field, this source covers current diagnostic procedures, genetic developments, explorations of animal models, new definitions and criteria, and improved epidemiological surveys to reflect the explosion of research in this evolving science."</span><span style="font-family: arial; font-size: small;"><br />
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The book appears to be published in December of 2006. I have downloaded the book but I have not yet had a chance to read it yet. It has <span style="color: #ff6600; font-weight: bold;">736</span> pages!! You can download it <a href="http://www.medicalplanet.in/2010/04/narcolepsy-and-hypersomnia.html" style="font-weight: bold;">HERE.</a><br />
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With the download, there are some other files that come with it that appear to be links to other services and possibly material that the website might be trying to sell, but you don't have to open them unless you want to. My computer did not detect any virus or malware with this file download, but of course, <span style="color: #ff6600; font-weight: bold;">make sure you check it on your computer, just to be safe</span>!<br />
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I hope that this will be useful to some of you, and the website the book came from looks pretty interesting too, although this was my first visit.<br />
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If you get a chance to check it out, <span style="color: #ff6600; font-weight: bold;">please</span> leave a comment!<br />
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Go Easy!<br />
Ja</span>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com9tag:blogger.com,1999:blog-19444907.post-73466172290364462812009-10-28T17:15:00.006-04:002010-05-26T16:50:19.445-04:00This Sleepy Woman Hasn't Had Too Many Adventures Lately!<span style="font-size: normal;"><span style="font-family: arial;">Hola everyone reading!</span><br />
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<span style="font-family: arial;">I haven't written in awhile, and I am sorry for that, if anyone was wanting to read here. My dog died Aug 10th, and it has been a little harder than I thought it would be. He was 14 years old, but very young acting! In the last year he got Diabetes and it was really hard on him. He also went blind (overnight) this year, but adapted so well, and did a great job finding his own way anywhere.</span><br />
<br />
<span style="font-family: arial;">I loved him like family, and after having him for 14yrs, he was my little brother. He died in his sleep at the vet. They initially had to give him lots of phenobarbatal because he was having seisures that wouldn't stop. By the next day, he still was having them in his sleep and died.</span><br />
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<span style="font-family: arial;">I want to write here again, I have been reading a lot, but it was just hard to write anything without losing it. As many of you already know, stress really messes with your Narcolepsy too! I am hanging in there, and I hope that all of you are too. For any of you that pray, please pray for my family and the grief process. We are doing ok, but without God, I dont even want to think about where I would be!</span><br />
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<span style="font-family: arial;">Thanks Mucho!!</span><br />
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<span style="font-family: arial;">This is my dog Leo. :)</span></span><br />
<span style="font-size: normal;"><br />
</span><br />
<span style="font-size: normal;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiuahBPuNw_yztMKw0_mXHzWXPhXS6YbzVoLSC_B5IQGPiK3IH6x1DVAXXTYuGnm-BiLWShFUkCGVY1Anj16DZgwvP_orV5uqBcfvSglyKFfzMsOveudaxiNM9HABwkD41AEq3l/s1600-h/leo2.jpg" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img alt="" border="0" id="BLOGGER_PHOTO_ID_5397765839706577922" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiuahBPuNw_yztMKw0_mXHzWXPhXS6YbzVoLSC_B5IQGPiK3IH6x1DVAXXTYuGnm-BiLWShFUkCGVY1Anj16DZgwvP_orV5uqBcfvSglyKFfzMsOveudaxiNM9HABwkD41AEq3l/s320/leo2.jpg" style="cursor: pointer; float: left; height: 160px; margin: 0pt 10px 10px 0pt; width: 206px;" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-HHUioRZQhPGoN1mGDhpTevrVVUywsE32vGm2FrZ2wLtwCQg2zwoZE8WV2warBR3A0GQuJelfxe_IfyYiwWWEZcshI804bZ0Q-KBuM3LQl5UfNmvLnybFbJXwixkdBgvvjQQH/s1600-h/499626417_l.jpg" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img alt="" border="0" id="BLOGGER_PHOTO_ID_5397766045433718210" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-HHUioRZQhPGoN1mGDhpTevrVVUywsE32vGm2FrZ2wLtwCQg2zwoZE8WV2warBR3A0GQuJelfxe_IfyYiwWWEZcshI804bZ0Q-KBuM3LQl5UfNmvLnybFbJXwixkdBgvvjQQH/s320/499626417_l.jpg" style="cursor: pointer; height: 190px; width: 190px;" /></a></span>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com3tag:blogger.com,1999:blog-19444907.post-61564652917028924162009-07-29T02:58:00.012-04:002010-05-26T16:27:58.155-04:00Alternative Treatments for Narcolepsy? Be Careful! Part B<span style="font-family: arial; font-size: 100%;">Hola all.<br />
<br />
My last post was about these websites <span style="font-size: small;">that seem to be popping </span>up all over the place and tout alternative therapies for treating, healing and yes even "eradicating" Narcolepsy altogether.<br />
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I started talking about one of these treatments called "Corsatax". Their website claims,<br />
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"</span><span style="font-family: arial; font-size: 100%;">Unlike other Narcolepsy products which are slow or ineffective, Corsatax has the unique ability to provide long term support in a relatively short time through an easy one-a-day pill regimen. In recent years there has been an increasing interest by medical researchers, practitioners and also the general public in natural plants and herbs as sources of medicine. All pharmaceutical companies are now finally admitting the fact that plants and herbs are by nature endowed with substances that have incredibly powerful healing powers."<br />
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I found their statement very general and not really informative about this one-a-day pill regimen. They list absolutely no links to studies performed on their product. In the ingredients section, they do list the "properties" of each herb used, but site no authority or mention where the heck they got the info.<br />
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As mentioned i my last post, I wrote them via web form at their site to request more info on and studies that may have been perform, and expressed my interest in trying the product. <span style="font-weight: bold;">I have not at this point received any reply to my request. <span style="color: #009900;">Surprise!</span></span><br />
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<span style="color: #ff6600; font-weight: bold;">And here is where it becomes a real hot mess;</span><br />
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By doing a simple (ok, a little more than simple) search on some phrases they use on their website, this "company" seems to have more than 100 other websites almost completely identical to the "Corsatax" site. yep, there's: </span><span style="font-size: 100%;"><br />
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</span><span style="font-family: arial; font-size: 100%;"><span style="font-weight: bold;">Ongrotax: </span>A unique Gonorrhea product<br />
<span style="font-weight: bold;">Sintatex:</span> A unique Tinnitus product.<br />
<span style="font-weight: bold;">Lipratax: </span>A unique Oral Leukoplakia product.<br />
<span style="font-weight: bold;">Meslarax:</span> A unique Inclusion BodyMyositis product.<br />
<span style="font-weight: bold;">Glocatax:</span> A unique Glaucoma product.<br />
<span style="font-weight: bold;">Dermatax:</span> A unique Dermatomyositis product.<br />
<span style="font-weight: bold;">Gemlarax:</span> A unique Polymyalgia Rheumatica product.<br />
<span style="font-weight: bold;">Nebralex: </span>A unique Boils product.<br />
<span style="font-weight: bold;">Vomorax:</span> A unique Cyclic Vomiting Syndrome product.<br />
<span style="font-weight: bold;">Kidnatrex: </span>A unique Renal Failure product.<br />
<span style="font-weight: bold;">Myorex:</span> A unique Cluster Headache product.<br />
<span style="font-weight: bold;">Cervorax:</span> A unique Cervical Spine product.<br />
<span style="font-weight: bold;">Gravitax: </span>A unique Myasthenia Gravis product.<br />
<span style="font-weight: bold;">Vegarax:</span> A unique Graves' Disease product.<br />
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<span style="color: #009900; font-weight: bold;">And about a kagillion more...(do these people have any conscience?) Do they just sit around making up names....?!?!?</span><br />
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Each website is <span style="font-weight: bold;">almost complete identical</span> other than the name of the product, and some of the ingredients.<span style="font-style: italic; font-weight: bold;"> It's is a damn shame.</span><br />
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The "company",<span style="font-weight: bold;"> Botanical Sources</span>, is supposedly in Italy, and I imagine it has a front yard full of <span style="color: #cc66cc; font-weight: bold;">unicorns</span>, and <span style="color: #3333ff; font-weight: bold;">rainbows</span> with pots of <span style="color: #ff9900; font-weight: bold;">gold</span> at the ends. It may as well, because that address is <span style="font-weight: bold;">nonexistent</span>, or perhaps and PO box of some sort.<br />
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I am sorry to make this post so long, but there is more...Here is the <span style="color: #ff6600; font-weight: bold;">HOT HOT mess section</span>.<br />
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At the website <span style="font-weight: bold;">"Rip-off Report"</span>, a site where consumers can publish complaints about purchases or fraudulent activity, There are a few interesting complaints about the lovely "Botanical Sources" co. <a href="http://www.ripoffreport.com/searchresults.asp?q5=Botanical%20Sources&q1=ALL&q4=&q6=&q3=&q2=&q7=&searchtype=0&submit2=Search%21&Search=Search">Click here to read from the website</a>, or here is a snippet of the complaints below;<br />
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<span style="font-weight: bold;">From the site, a customer writes:</span><br />
"I ordered an herbal product called Voltarax from this company not knowing they were located in Italy.My order took almost a month to reach me. When it did arrive I noticed it was mailed from Pakistan. The packaging does indicate that it was made in Pakistan. Had I known upfront that I was ordering a supplement that was made in and mailed from Pakistan I would not have ordred.<br />
Botanical Sources is using a company CCnow as a 'retailer' in the US to process payment information. Buyer beware."<br />
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<span style="font-weight: bold;">And...</span><br />
"This web site preys on people looking for natural cataract relieve. It almost seems like a legitimate site until you look for a telephone number to ask questions and there is none. Their address in Italy does not exist. The web page does have a false area to submit your name, e-mail address and phone number<span class="kLink" style="position: static; text-decoration: underline ! important;"><span style="color: #b00000; font-family: Verdana,Arial,Helvetica,sans-serif; font-size: 13px; font-weight: 400; position: static;"><span class="kLink" style="border-bottom: 1px solid blue; color: blue; font-size: 13px; font-weight: 400; position: static;"></span></span></span> stating that they will get back to you immediately. Of course they never will. It claims of natural herbs from India known to heal cataracts. The frauds call their product Secarx."</span><span style="font-size: 100%;"><br />
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<span style="font-family: arial;">Well, I guess I am the bearer of bad news. I wish that they were legit. I knew they weren't, as most of you did too. <span style="font-weight: bold;">We have to be careful! </span> Always check with other before wasting your hard earned bucks on crap like this. I just wish I could figure out how to<span style="color: red; font-weight: bold;"> take them down</span>!!!!!</span></span><br />
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<span style="font-size: 100%;"><span style="font-family: arial;">What do you all think about this crappalicious crap!!!????? Let me know, maybe we can get the word out, or form a coalition to get these meanies together and .....and pinch them really hard ...or something....maybe make them take one of our natural remedies...called Crappheadtax. Kinda catchy, huh...</span><br />
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<span style="font-size: 180%;"><span style="color: #cc33cc; font-family: arial; font-weight: bold;">:)</span></span></span><span style="font-size: 100%;"><span style="font-family: arial;"><br />
</span></span>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com4tag:blogger.com,1999:blog-19444907.post-14461630479872425602009-07-19T15:42:00.009-04:002010-04-15T01:04:53.977-04:00Alternative Treatments for Narcolepsy? Be Careful! Part Uno<span style="font-family: arial;"><span style="font-size: 85%;">(This is kind of a long post, but I hope it may be of great use to some of you out there! I certainly am interested in knowing all I can:)</span><br />
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I don't know anyone that wouldn't be ecstatic to find a natural way to make Narcolepsy go away or even something that would help reduce Narcolepsy's symptoms. I know I am one of those willing to try any safe natural treatment. Hey, If it doesn't work for me, no real loss, right? At least it would be a learning experience. And, as the saying goes, what works for some, may not work for others. (I think that is a saying...but oops, if it is not)</span><br />
<span style="font-family: arial;"><br />
Those who know me know I am a researcher. I look for news everyday, regarding new information about Narcolepsy, and read way to much, most of which is written in a language that I understand, at best, only a bit, due to the medical terminology. (Why didn't I become a doctor or geneticist...:)</span><span style="font-family: arial;"><br />
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So with that being, I have always noticed some "natural cures" that pop up on the web from time to time claiming that Narcolepsy is over, done been cured, that is, with the help of their well studied, miraculous mixture of herbs, that completely kick Narcolepsy in the butt! Yeah, right...</span><span style="font-family: arial;"><br />
</span><br />
<span style="font-family: arial;">I have tried to find information about the companies that have these websites that are strangely similar in many ways. I have tried to find out if anyone has tried any of them....can't find a soul, except for the testimonials of those on the products website. So, as much as I had ever wanted to just try them, my conscience just cannot allow me to. Below I gathered some info from each of these sites for your viewing. I also have written to two of them, which I have below as well. </span> <span style="font-family: arial;"><br />
My personal comments are in </span><span style="color: #cc0000; font-family: arial; font-weight: bold;">RED</span><span style="font-family: arial;"> so it doesn't get confusing.</span> <span style="font-family: arial;">Here it tis...oh <span style="font-weight: bold;">ps</span>. I didn't list the website addresses. A quick Google, and you'll find them fast if needed.</span><span style="font-family: arial; font-weight: bold;"><br />
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Treatment name:</span><span style="font-family: arial;"> </span><span style="font-family: arial; font-style: italic;">Corsatax</span><br />
<span style="font-family: arial; font-weight: bold;"><br />
Claim from their website:</span> <span style="font-family: arial;">"Unlike other Narcolepsy products which are slow or ineffective, Corsatax has the unique ability to provide long term support in a relatively short time through an easy one-a-day pill regimen. In recent years there has been an increasing interest by medical researchers, practitioners and also the general public in natural plants and herbs as sources of medicine. All pharmaceutical companies are now finally admitting the fact that plants and herbs are by nature endowed with substances that have incredibly powerful healing powers."</span><span style="color: red; font-family: arial; font-style: italic;">...uh....this statement actually has nothing to do with their unique product! duh.</span><span style="font-family: arial; font-weight: bold;"><br />
</span><br />
<span style="font-family: arial; font-weight: bold;">Cost:</span><span style="font-family: arial;"> 60 tabs=65.00 90 tabs=95.00</span><span style="font-family: arial; font-weight: bold;"><br />
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Guarantee:</span><span style="font-family: arial;"> "After placing your order, if you believe for any reason that Corsatax is not suitable for you or you do not find it meeting your health expectations, you have nothing to worry about. All you have to do is to send us back the unused portion (or the empty bottles if you have used the whole product) and all amount that you have paid us would be refunded immediately without any delay. It is completely up to you if you want to give a reason as you will not be asked for any. This guarantee is valid for 60 days from the date of purchase, thus allowing enough time for delivery to your door and to experience results."</span><br />
<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-weight: bold;"><br />
Company:</span> Botanical Sources Via Canova 24, Suite # NR 320 Roma 00186 Italy <span style="color: red;">Ok, they have a guarantee, sound to good to be true? Me thinks so... They provide NO studies done on the product, but they do provide links to studies about natural plants being useful in medicine, as if they think the average person doesn't know that that has already been known since the beginning of time. errrrr... Since they provide no evidence or real info about their product, I used their contact form to write them this letter:</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;">I wrote:</div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="color: red;">"Hello,</span> <span style="color: red;">I am interested in learning more about your treatment. Are there any specific studies that have been done using Corsatax? I am eager to </span><span style="color: red;">read these type of studies, published or private. I look forward to hearing from you.</span> <span style="color: red;">Thank You."</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;">I will update with any additional info I receive. I hope they get back with me with great proof, I really do. But my realistic mind tells me they won't. I hope I am wrong. Until then, I would advise anyone not to jump into this one. You may never get your money back and they list no proof of their product working, with the exception of their overly generic testimonials. Darn!</div><div style="font-family: Arial,Helvetica,sans-serif;"><b style="color: #b45f06;">UPDATE: As of April 15, 2010, I have not heard anything from this company...Surprise!</b></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;">If anyone out there has tried this product, I would love love love, did I mention, Love to hear from you. I have always wanted just to try it and see what happens, but I just don't have the money to take that chance.</div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;">Oh, I have broken this post down, so my next post will be about another company similiar to this one, with another product aimed toward knocking Narcolepsy on it's proverbial butt. :) Thanks everyone for reading my posts. I love ya all!</div><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMAjV_X0hCPfo_mwncelC1MAwbaUobpJDehNXgapwPvC-stxHIeB4FZ7l2flMaH7LizsYTGOmi8-lDhomTkgM8lPinvJ4MrLszJ0MgRZ7SY49frkh5N0VUvX2TeniO3EbjV2RA/s1600-h/treegreen.jpg" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img alt="" border="0" id="BLOGGER_PHOTO_ID_5360271050920677762" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMAjV_X0hCPfo_mwncelC1MAwbaUobpJDehNXgapwPvC-stxHIeB4FZ7l2flMaH7LizsYTGOmi8-lDhomTkgM8lPinvJ4MrLszJ0MgRZ7SY49frkh5N0VUvX2TeniO3EbjV2RA/s320/treegreen.jpg" style="cursor: pointer; display: block; height: 264px; margin: 0px auto 10px; text-align: center; width: 320px;" /></a>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com14tag:blogger.com,1999:blog-19444907.post-6208664306466072042009-06-26T22:04:00.003-04:002009-06-26T22:11:00.399-04:00Genetics Traits, and the Most Genetically Annotated Human on Earth!<span style="font-size:100%;"><a style="font-family: arial;" href="http://www.technologyreview.com/blog/experimentalman/23718/">Click here </a><span style="font-family:arial;">for one of the most interesting articles on how genetic traits can be analyzed. This author of the article has had 5094 traits analyzed! A world record, and an amazing story. </span></span>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com4tag:blogger.com,1999:blog-19444907.post-52681631197332170132009-05-26T03:48:00.001-04:002009-05-26T06:38:39.922-04:00Narcolepsy - poetryI woke up this morning<br />"2:43" said the blazing red lights<br />About four hours before my alarm<br />Usually goes off and slaps me awake...<br /><br />I woke up this morning<br />Sat straight up in my bed<br />All bright-eyed and bushy-tailed like they say,<br />Rubbed my crunchy eyes and stared out my window<br />And into the slow blackness of night...<br /><br />Still and cold and deathly quiet<br />Nothing moved, not even the trees,<br />Not even the clouds,<br />It was as if time had stopped, and I<br />Was the only one left behind, and it felt like<br /><br />"The ship leaves in five minutes"<br />And I had slept through it all-- the megaphones, the shouts,<br />Even the sirens in the distance,<br />I missed the exodus, the passage<br />Again...<br /><br />But when I woke up this morning<br />I put on my suede slippers,<br />You know them, the fuzzy ones that makes me shoot sparks<br />And I shuffled off into the dark kitchen<br />Wondering if I had lost something there<br />Like cold pizza from the night before...<br /><br />Casting shadows from the refrigerator<br />I was hungry but did not eat<br />I was thirsty but did not drink<br />I was tired but did not sleep<br />Because somewhere I swore I heard you laugh...<br /><br />At least I thought I heard you laugh,<br />Like fat stormy raindrops on my window pane,<br />Like blue-white snowflakes pushing February away,<br />Like a bamboo windchime with its wires tangled...<br /><br />I woke up this morning<br />Wishing I could fall back to sleep,<br />Because my dream made no sense<br />And there was no one there I could tell it to...<br /><br /><a class="u" href="http://rapidograph.deviantart.com/art/narcolepsy-33747253#">©2006-2009 @rapidograph</a>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com3tag:blogger.com,1999:blog-19444907.post-39836091623232931842009-05-24T00:01:00.002-04:002009-05-24T00:11:06.217-04:00Wakey Wakey! People with Narcolepsy<span style="font-family:arial;">Hey peeps.</span><br /><br /><span style="font-family:arial;">I just got a email from a friend, Chris"Toph4er" reminding me about one of the greatest forums ever. He does a hella job over there at "People with Narcolepsy" so I wanted to mention it here. It may be a forum that you have never checked out yet. The people over there are friendly and love new folks stopping by.<br /><br />If you like to do the forum thing, this is a great forum to check out. <a href="http://www.teamidesign.com/pwn/index.html">Click here to go check it!<br /></a><br />I hope everyone is doing well. And how about that proof about Narcolepsy being an autoimmune disorder! I was really excited to read that, but now I am just crazy to know what that really means for us. Anyone havve any ideas?<br /></span> <pre style="font-size: 9pt;"><tt><tt><tt><tt></tt></tt></tt></tt></pre> <pre style="font-size: 9pt;"><tt><tt></tt></tt></pre>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com2tag:blogger.com,1999:blog-19444907.post-972893171018998062009-04-10T01:11:00.005-04:002009-04-11T14:59:34.921-04:00Does Narcolepsy Make You Post to Your Blog Less??<span style=";font-family:arial;font-size:100%;" >Hola!<br /><br /></span><span style=";font-family:arial;font-size:100%;" >I have really been trying to write in this blog on a regular basis. I am guessing that it is quite apparent that I have not been doing such a fantastic job at it :(</span><span style=";font-family:arial;font-size:100%;" ><br /><br /></span><span style=";font-family:arial;font-size:100%;" >My little cutie dog got sick, and it has been tough to deal with, but I am sure It might be most difficult for him. He went completed blind literally overnight. When we got to the vet explained it could be a illness caused SARD where pet go blind rapidly, without know why. Then, that same week he was diagnosed with Diabetes. After that, all sign are pointing to another additional diagnosis of Cushings disease. </span><span style=";font-family:arial;font-size:100%;" ><br /><br /></span><span style="font-family:arial;"><span style="font-size:100%;"><span style="font-family:arial;">My poor little guys has really been through some difficult times lately. If anyone gets a moment, would you please say a prayer for him? Thank you in advance!!</span><br /></span><br /></span><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7e2XEXET7xTsj_SLvntYYVCa1GEAqRYdy3qMWrjmz35hOsED_FS9tv2JxTeQ5joiXi_dZyS0E-Y2LnS55mRLz_spSyuDWNqWtDjeXJNIsm4Jhxx_Mz66sFnf5AloGVFYjXWk9/s1600-h/starwarsdogs.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 221px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7e2XEXET7xTsj_SLvntYYVCa1GEAqRYdy3qMWrjmz35hOsED_FS9tv2JxTeQ5joiXi_dZyS0E-Y2LnS55mRLz_spSyuDWNqWtDjeXJNIsm4Jhxx_Mz66sFnf5AloGVFYjXWk9/s320/starwarsdogs.jpg" alt="" id="BLOGGER_PHOTO_ID_5322937123700832898" border="0" /></a>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com0tag:blogger.com,1999:blog-19444907.post-59952759648945540042009-02-15T17:57:00.009-05:002009-02-15T19:23:58.655-05:00Helloooo! Check Out This Great Narcolepsy Blog Site!<div style="text-align: left;"><span style="font-family:arial;">Good day everyone! I remember a couple of months ago looking at a site that different people had posted some things in a blog type format, about having Narcolepsy. I just checked It out again, and it has a lot more entries from many different perspectives! <span style="font-weight: bold;">On the site it states;</span></span><br /><span style="font-style: italic;font-family:georgia;font-size:100%;" ><br /></span><div style="text-align: center; font-style: italic;font-family:arial;"><div style="text-align: left;"><div style="text-align: left;"><span style="font-size:100%;"> "If you've got something to say about sleep disorders</span><span style="font-size:100%;"><br /></span></div><div style="text-align: left;"><span style="font-size:100%;"> you can say it here. Prose, poetry, photography;<br /></span></div></div><div style="text-align: left; font-style: italic;font-family:arial;"><span style="font-size:100%;"> whatever form of expression suits you<br />best (within reason).</span><span style="font-size:100%;"> Please email your contribution<br />to (email is listed at the actual site) </span><span style="font-size:100%;">with the<br />subject line "We are not lazy". Please include </span><span style="font-size:100%;"><br /></span></div></div><div style="text-align: left;"><span style="font-style: italic;font-family:arial;font-size:100%;" > your name (or a pseudonym), age and location."</span><br /></div></div><span style="font-style: italic;font-family:arial;" ><br /></span><span style="font-family:arial;">Even If you don't want to add to this really cool blog, <span style="font-weight: bold;">make sure</span> you at least go check them out!! It is really nice to be able to read about how other people feel, and what they think about Narcolepsy. Just </span><a style="font-weight: bold; font-family: arial;" href="http://www.wearenotlazy.com/">CLICK HERE</a><span style="font-family:arial;"> or up at the title of this entry to check out the blog called "We are not lazy". </span><br /><br /><div style="text-align: center; font-family: arial;">Hope you all had a great weekend!<br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9UW0ORZkkzcgjr5p2bjJMKfvTVtjHHxvVy0XjAdlEam_OA3FeZmjj-VCrQpXFheDXMi-5KuyoT2Jh6oV7bgIgKh9uNA0yZDRCBaaJKr2zn1sw7gG5l2pO3GdVJBmngyDMw9ec/s1600-h/superdog.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 208px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9UW0ORZkkzcgjr5p2bjJMKfvTVtjHHxvVy0XjAdlEam_OA3FeZmjj-VCrQpXFheDXMi-5KuyoT2Jh6oV7bgIgKh9uNA0yZDRCBaaJKr2zn1sw7gG5l2pO3GdVJBmngyDMw9ec/s320/superdog.jpg" alt="" id="BLOGGER_PHOTO_ID_5303181532836511266" border="0" /></a><br /></div><br /><br /><span style="font-style: italic;font-family:arial;" ></span>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com5tag:blogger.com,1999:blog-19444907.post-20515540778348832122008-12-17T16:43:00.005-05:002008-12-17T16:50:58.900-05:00Going Gray Early? Is There a Link to Narcolepsy?<span style="font-family:arial;">Narcolepsy is such a mystery. Some people think that it is an autoimmune disease. Check out this article about the connection between autoimmune diseases and having gray hair before the age of 30. Did any of you peeps with Narcolepsy go gray early? Here's the link, let me know what you think, ok?</span><br /><br /><a href="http://www.informativepost.com/2008/12/09/Gray-Hair-before-Age-30-May-Mean-Health-Risks-2752.htm"><span style="font-family:arial;">Gray Hair Before Age 30 May Mean Health Risks...</span></a><br /><br /><span style="font-family: arial;">Have a great day!:)</span>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com0tag:blogger.com,1999:blog-19444907.post-52172141705859952142008-10-16T20:40:00.004-04:002008-10-16T21:40:44.139-04:00Long Term Effects of Narcolepsy - What Do You Think?<span style="font-family:arial;">I have seen many articles lately about Narcolepsy, and it's symptoms and general information regarding this illness. One of the interesting things, to me anyway, are the differences in opinions about Narcolepsy and how it effects it's target. I have collected some opinions from various websites, and posted them below, with links, to see what you think.</span><br /><br /><span style="font-family:arial;">Do any of these explanations seem accurate in your life? How does Narcolepsy effect you? I am so interested in the opinions of others on how Narcolepsy has changed your life. What is different since you have been effected by Narcolepsy?</span><br /><br /><span style="font-family:arial;">Here are some snippets from various sites on the subject. The link to the actual website is included. Let me know what you think, OK?</span><br /><br /><span style="font-weight: bold;font-family:arial;" >Long Term Effects of Narcolepsy<br /></span><br /><span style="font-weight: bold;font-family:arial;" >From the website of Narcolepsy Network - <a href="http://www.narcolepsynetwork.org/?page_id=6#q11">Click here to go to site.<br /></a><span style="font-family:arial;">...</span></span><span style="font-family:arial;">The consequences of narcolepsy may be many and far reaching. Sleep attacks and cataplexy in public are embarrassing and can cause serious social and economic difficulties. Cataplexy may interfere with physical activities, and efforts to avoid emotions may lead to social withdrawal. Inability to work and/or drive may result in loss of independence, financial difficulties and a multitude of other problems. In these situations, a person can easily lose touch with others and become depressed...</span><br /><span style="font-family:arial;">----------<br /><span style="font-weight: bold;">The following text excerpts taken from SleepFoundation.org</span> - <a href="http://www.sleepfoundation.org/site/apps/nlnet/content3.aspx?c=huIXKjM0IxF&b=2462667&content_id=%7BBB9407DE-75D4-44AC-8A7D-56592A368A80%7D&notoc=1"><span style="font-weight: bold;">Click here for the exact page</span></a><br />...The symptoms of (and some of the drugs taken for) narcolepsy may affect your sex life. Sexual problems, such as low sex drive and impotency, may result from severe sleepiness, depression, medications or cataplectic attacks. These problems, especially any resulting from a new medication or changed dosage, should be discussed with your doctor....</span><br /><br /><span style="font-family:arial;">...Narcolepsy symptoms can also result in a change or loss of employment, physical restrictions and social withdrawal. Loss of self-esteem, learning difficulties and depression can result...<br />----------<br /><span style="font-weight: bold;">Below are a few words from the Aurora Health Care site, from an article intitl</span><span style="font-weight: bold;font-family:arial;" >ed "</span></span><noindex style="font-family: arial; font-weight: bold;"></noindex><span style="font-size:100%;"><span style="font-weight: bold;font-family:arial;" >In his own words: living with narcolepsy". The whole article is good. You can check it out, </span><a href="http://www.aurorahealthcare.org/yourhealth/healthgate/getcontent.asp?URLhealthgate=%229662.html%22"><span style="font-weight: bold;font-family:arial;" >click here.</span></a></span><span style="font-size:100%;"><a href="http://www.aurorahealthcare.org/yourhealth/healthgate/getcontent.asp?URLhealthgate=%229662.html%22"><br /><br /></a><span style="font-family:arial;">...</span></span><span style="font-family:arial;">I've had to make many lifestyle changes. I had to give up my military career and change jobs. I only swim in shallow water. I'm still a heavy coffee drinker, just not three pots a day. I take regular naps, generally after lunch, around 4, and after supper. I can regulate when I need a nap. And by taking naps, I don't have to take as much medication. Since emotions can trigger cataplexy, I have to walk away from confrontational situations or I may fall over...<br />----------<br /><span style="font-weight: bold;">At the website of Health Central, here is what they have to say about the emotional and social effects of Narcolepsy. <a href="http://www.healthcentral.com/sleep-disorders/understanding-narcolepsy-000098_4-145.html?ic=506019">Click here to go to the website.</a></span></span><span style="font-family:arial;"><br /><br /><span style="font-family:arial;">...</span></span><span style="font-family:arial;">The patient suffers emotional and social difficulties from the uncontrollable sleep episodes and cataplexy. Studies have reported rates of depression in people with narcolepsy ranging from 30 - 57%. (In the general population, prevalence of depression is 8%.) Studies have shown severe emotional and social dysfunction in all areas, including work, relationships, and leisure activities. One study reported that 25% of men with narcolepsy suffered sexual problems. Some experts believe that the psychological and social effects are more serious than those caused by epilepsy (which narcolepsy can be mistaken for)....</span><br /><span style="font-family:arial;"><br />There are many opinions about the effects of Narcolepsy on one's life. We all have our own unique experiences and opinions. How does it effect your life? What area in your life that is effected by Narcolepsy do you find the most difficult to deal with?<br /><br />I am really interested in hearing different experiences, and I would like to post some of them here, with your permission. </span><br /><span style="font-family:arial;"><br />Well, everyone, have a great rest of the week, and oh yeah, have any of you seen the film "90 Naps a Day" yet? I got some interesting opinions from some of you who have seen it, and I hope to write a little about it soon. I haven't seen it yet, I am in the U.S, and I haven't found a way to see it, I have only been able to see some clips.<br /><br /></span><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhY3Mfn1vsVF91Xtx8bZojJ42y6knhO37Gmq6kred_9zRhvrKXtAkK_C_0aQke6AeiiTT-3FzBF9ySmDnlhHZjRMpc4DOYg5bOIzuMz02EiflFpRRoSLlzzM-llqo9Ut_hWYEEt/s1600-h/l_7c4ff96a80228542621eec99f82cffc2.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhY3Mfn1vsVF91Xtx8bZojJ42y6knhO37Gmq6kred_9zRhvrKXtAkK_C_0aQke6AeiiTT-3FzBF9ySmDnlhHZjRMpc4DOYg5bOIzuMz02EiflFpRRoSLlzzM-llqo9Ut_hWYEEt/s320/l_7c4ff96a80228542621eec99f82cffc2.jpg" alt="" id="BLOGGER_PHOTO_ID_5257928997634345138" border="0" /></a><br /><span style="font-family:arial;"><br /></span><h2 style="font-family: arial; font-weight: normal;" class="title"></h2>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com16tag:blogger.com,1999:blog-19444907.post-35495780959065578192008-10-02T18:26:00.004-04:002008-10-03T07:08:15.385-04:00Scientists pinpoint genetic driver of narcolepsy<span class="headline" style="font-family:arial;"><span style="font-weight: bold; color: rgb(0, 102, 0);font-size:130%;" >Scientists pinpoint genetic driver of narcolepsy- </span><a href="http://www.zeenews.com/fullstory.asp?redirectpage=f&aid=472572&sid=ENV&ssid=28"><span style="font-weight: bold;"><span style="color: rgb(0, 102, 0);font-size:130%;" >click here for a link<br /></span><br /></span></a><span style="color: rgb(0, 0, 0);">I have been seeing quite a few news articles related to this genetic discovery in the past week.</span><span style="font-weight: bold; color: rgb(0, 0, 0);"> </span></span><br /><br /><span style="color: rgb(0, 0, 0);font-family:arial;" >Scientists in Japan have identified a genetic mutation linked to narcolepsy. I wonder what this means for the future of those with this disease, and finding a cure or alternative ways of treatment. Pretty interesting stuff!</span><br /><br /><span style="color: rgb(0, 0, 0);font-family:arial;" >On a side note, I have been sleeping approx. 15 hrs. a pop/day, for about a week. Today, I woke up, and felt like I had energy. I forgot what that felt like. I will NEVER take any energy or "good" days for granted! Oh what a great feeling it is to feel like moving, reading, working, shoot, doing anything!!</span><br /><br /><span style="color: rgb(0, 102, 0); font-weight: bold; font-style: italic;font-family:arial;" >How are all of you doing?</span><br /><br /><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqzNKYORubrbKlQOAP23hR9MfVGc_U-A0cLT-Mh4JQmxfvf6sgPLysfj-2AeeBTKdN2Hs6jhyexm4rw7u5MR_RmqQWNj0bv4AdrlwNtLeahMRWWL4LmZB6vjszqQEZ22uO4bep/s1600-h/Imgp0967.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqzNKYORubrbKlQOAP23hR9MfVGc_U-A0cLT-Mh4JQmxfvf6sgPLysfj-2AeeBTKdN2Hs6jhyexm4rw7u5MR_RmqQWNj0bv4AdrlwNtLeahMRWWL4LmZB6vjszqQEZ22uO4bep/s320/Imgp0967.jpg" alt="" id="BLOGGER_PHOTO_ID_5252690801031212850" border="0" /></a><span style="color: rgb(0, 102, 0);font-size:85%;" ><span style="font-weight: bold;font-family:arial;" >This puppy was at the gas station, and I had to take a pic! What a cootie bug poo!!!</span></span><br /></div><span class="headline"><a href="http://www.zeenews.com/fullstory.asp?redirectpage=f&aid=472572&sid=ENV&ssid=28"><br /></a><br /></span>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com0tag:blogger.com,1999:blog-19444907.post-711262482687671162008-09-19T05:29:00.004-04:002008-09-19T05:43:49.380-04:00Upside Down Rainbows, in the midst of mayhem...<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRmty-tq_DYdwvnxywbr4wbVrw80aaeie2wn6PbRZqmjnnhAc7YgIvnkTQMJsgMtAtTNt2LW_Crhrv3mTrmSSDbr46gYq6avUXkzJ78m7AZetI9KdzxvpTlnqvMDz9iw5Bhwtu/s1600-h/upside+down+rainbow.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRmty-tq_DYdwvnxywbr4wbVrw80aaeie2wn6PbRZqmjnnhAc7YgIvnkTQMJsgMtAtTNt2LW_Crhrv3mTrmSSDbr46gYq6avUXkzJ78m7AZetI9KdzxvpTlnqvMDz9iw5Bhwtu/s320/upside+down+rainbow.jpg" alt="" id="BLOGGER_PHOTO_ID_5247665316761360242" border="0" /></a><br /><span style="font-family:arial;">WOW...</span><br /><br /><span style="font-family:arial;">These past few weeks have been filled with mayhem, craziness, and odd happenings. So many things that have happened in the world lately have been devastating. From natural disaster to tainted products in China, hurting so many people. Please, don't forget, if you are a prayer-er (highly recommended here:)) to keep all of these people in your prayers, thoughts, and actions.</span><br /><br /><span style="font-family:arial;">While reading the news today, I came upon, yet, another strange incident, but this time, it was beautiful, and a winner! </span><br /><br /><span style="font-family:arial;">In the UK, Cambridge to be exact, a upside down rainbow was spotted, and captured by photo. Take a peek at the story </span><a style="font-family: arial;" href="http://www.dailymail.co.uk/news/article-1056500/Pictured-Rare-upside-rainbow-spotted-UK.html">here. Click here for the story and picture.<br /><br /></a><span style="font-family:arial;">Wow. One commenter on the story mentioned "It looks like God's smile!". It is a beautiful thing. </span><br /><br /><span style="font-family:arial;">Thanks God! I am sure that it really helped some people today. When I take the time to look at the beauty of nature, it seems to always put things back into perspective. I am so blessed. I thank God today for his mercy, and kindness he has given me. Again, I am so blessed.</span>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com0tag:blogger.com,1999:blog-19444907.post-32888153411639222922008-09-07T19:48:00.009-04:002008-09-19T05:45:35.106-04:00<span style="font-weight: bold;font-family:arial;font-size:130%;" >Sara Palin, Pro life my a!@! </span> <h2 style="font-weight: normal;font-family:arial;"><span style="font-size:85%;"> How could someone who proclaims to be "pro-life" enjoy killing animals so much?</span></h2><h2 style="font-weight: normal;font-family:arial;"><span style="font-size:85%;">Check out these links. If you choose to vote in this upcoming election, make sure you are as educated as you can be about all of the candidates. We must know all that we can before we vote!<br /><br />Maybe you aren't a vegetarian, but is it really necessary to have a dead bear to sit your butt on? If you had to kill it yourself, would you still do it? How could killing an animal be such a badge of honor? Sickos!!!!<br /></span></h2><div style="text-align: center;"><span style="font-weight: bold;font-family:arial;font-size:85%;" >Nice Bear you are sitting on Ms. Palin....real nice.</span><br /></div><h2 style="font-family:arial;"><span style="font-size:100%;"><img src="file:///C:/DOCUME%7E1/COMPAQ%7E1/LOCALS%7E1/Temp/moz-screenshot-2.jpg" alt="" /></span><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://i86.photobucket.com/albums/k87/acongojada/l_64b9ad079ffbe0207ed80300e4971566.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px;" src="http://i86.photobucket.com/albums/k87/acongojada/l_64b9ad079ffbe0207ed80300e4971566.jpg" alt="" border="0" /></a><br /><span style=";font-family:arial;font-size:100%;" >Links:</span></h2><h2 style="font-family:arial;"><span style="font-size:100%;"><b><span style="color: rgb(0, 51, 153);"><a href="http://abcnews.%20go.%20com/Technology/wireStory?id=5514992">Polar Bears not as important as oil</a></span></b></span></h2><h2 style="font-family:arial;"><span style="font-size:100%;"><b><b><span style="color: rgb(0, 51, 153);"><a href="http://gov.%20state.%20ak.%20us/bio.%20php">Check out her offical bio, especially the pics!</a></span></b></b></span></h2>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com0tag:blogger.com,1999:blog-19444907.post-65616094095880307752008-09-01T18:29:00.003-04:002008-09-19T05:46:08.245-04:0090 Naps a Day...Hola peoples!<br /><br />There seems to be a new film among us entitled "90 Naps a Day", a film by Firefly, exploring Narcolepsy. <a href="http://www.broadcastnow.co.uk/news/2008/08/banks_bins_and_builders.html">Click here </a>for a link where I found this info, if you are interested.<br /><br />I did a search, and cannot find any other info about this flick. Anyone know any other info about it? I would love to know more, or where I could see it.<br /><br />I haven't written in a long time. I hope to be writing again, regularly now. Thanks to all of you that keep coming back and reading. I really appreciate it!!<br /><br />Go Easy!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQbzQcS6BQBFuwJ9ahidgnbTsOb11GuJHiezObpujZnyV3iuWuYMw1APr351C2IvlOHW4T5YDNCRDyS-RDlhv5FhG-BeDW7jQgLn3sIonNGjCACAy5B04nkZ4YqBKrJmNVEFNF/s1600-h/panda.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQbzQcS6BQBFuwJ9ahidgnbTsOb11GuJHiezObpujZnyV3iuWuYMw1APr351C2IvlOHW4T5YDNCRDyS-RDlhv5FhG-BeDW7jQgLn3sIonNGjCACAy5B04nkZ4YqBKrJmNVEFNF/s320/panda.jpg" alt="" id="BLOGGER_PHOTO_ID_5241186683045060290" border="0" /></a>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com8tag:blogger.com,1999:blog-19444907.post-48025316685203699642008-06-16T07:49:00.004-04:002008-09-19T05:46:37.759-04:00And Some People Think People With Narcolepsy are Dense!!!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiN4Jr0RG6W51a9SUGMU84FVVby6aCHschWLkK84AkIEBNSz5s8OovqgpQY6VaDFDs61DTkG3Opl1lYqerjsbZAqt2LEMUzYAOt86xmJJri9k3Aosu2IJI4NMdqP6gDhSevVUZP/s1600-h/leosleepy2.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiN4Jr0RG6W51a9SUGMU84FVVby6aCHschWLkK84AkIEBNSz5s8OovqgpQY6VaDFDs61DTkG3Opl1lYqerjsbZAqt2LEMUzYAOt86xmJJri9k3Aosu2IJI4NMdqP6gDhSevVUZP/s320/leosleepy2.jpg" alt="" id="BLOGGER_PHOTO_ID_5212448893826180866" border="0" /></a><br /><div style="text-align: center;"><br /></div><br />You know,<br /><br />Narcolepsy can make a person forget words, slur words, mangle words...you get the idea, right? In honor of all of my brothers and sisters in Narcolespy, I bring something new! Well, I have decided to offers my readers, (all 2 or 3 of you...LOL), a weekly game entitled,<br /><br /><span style="font-weight: bold;">"Who Forgot to Put on Their Thinking Pants"</span> quote game. Here's the deal...<br /><br />I will leave you a quote, and you try to guess who said it. There is one important rule however...<span style="font-weight: bold;">you absolutely cannot look the quote up...No Google-ing, no web search</span>, just your fresh brain matter, and who you think may have said the monstrosity that I post. Got it? OK. And the first person to guess the mess will get the prize. Except unfortunately, there really is no prize.<br /><br />Well, there is sort of a prize. <span style="font-weight: bold;">You will be listed as the winner!!!! Woooo Wooo! </span><br /><br />So here it goes, Here is todays funky funktabulus quote; remember, no cheating!!<br /><br /><span style="font-style: italic;">Who Said This:</span><br /><div style="text-align: left;"><span style="font-weight: bold; color: rgb(204, 102, 0);"> "One reason I like to highlight reading is, reading is the beginnings of the ability to be a good student. And if you can't read, it's going to be hard to realize dreams; it's going to be hard to go to college. So when your teachers say, read—you ought to listen to her."</span><br /><br />Happy Guessing! This one should be pretty easy!!!<br /><br />God Bless,<br />and Go Easy,<br />Ja<br /></div>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com2tag:blogger.com,1999:blog-19444907.post-91272572594089177362008-05-25T20:39:00.003-04:002008-09-19T05:47:04.128-04:00Narcolepsy, the Truth. Can You Afford Your Medication?<span style="font-size:100%;"><span style="font-family:georgia;">Do you have insurance, but still cannot afford your medicine? Do you have Narcolepsy and can't afford meds? </span><br /><br /><span style="font-family:georgia;">I no longer have insurance, and barely afford medication that doesn't really do much for me anyway, but I think about all of the people, <span style="font-weight: bold;">with and without insurance</span>, that cannot afford medication that they need for an illness. </span><br /><br /><span style="font-family:georgia;">I just read a really crazy story about a young lady that is trying to afford Provigil for her diagnosed Narcolepsy, and it is just<span style="font-weight: bold; font-style: italic;"> crazy</span> what </span></span><span style="font-family:Arial;"><span style="font-size:100%;"><span style="font-family:georgia;">Cephalon, the makers of Provigil suggested that she do. </span><br /><br /><span style="font-family:georgia;">Just read the story for yourself. <a href="http://prescriptionaccess.org/blog/?p=241">Click here to read her story.</a> What do you all think about it? What is your situation? Any feedback?</span><br /><br /><span style="font-family:georgia;">Go Easy,</span><br /><span style="font-family:georgia;">Ja</span></span><br /></span>Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com2tag:blogger.com,1999:blog-19444907.post-672406999034322872008-05-20T18:31:00.002-04:002008-09-19T05:48:01.261-04:00What do you do after you have tried everything?What do you do after you have tried everything?<br /><br />When your health is getting worse, and nothing that you try works?<br /><br />Narcolepsy is so tricky, and I guess just like everything else, what works for one person, may not work for another. Anyone out there with Narcolepsy, have any advice? I have taken Dexedrine for about 5 years now, with no increase in dosage. I worked full time, up until approx. one and a half year ago. First I went down to part time, then I was let go. I got the award for employee of the year! How could they just let me go??? Even after all of this time, it is like it happened yesterday. I guess my job was my life. It was the only stable thing I had.<br /><br />I am sorry if this a a depressing post. I just am letting it out...the cats out of the bag. I am not the "together" person that most think I am, and I am at a loss when it comes to what to do. I lost my job, my apartment, my car. I work part time now.<br /><br />I know I am blessed. I just am getting to the point where I cannot imagine living like this for the rest of my life. I don't want to die, I just don't want to live like this. I have been independent for most of my adult life. I think when one loses this independence, it can truly wreak havoc on your self worth, or your perceptions of yourself. I want to be a active part, a useful positive part of this world again.<br /><br />I know God knows what is going on, I just can't figure out what he wants me to do...<br /><br />or not do.Oh Hola I'm Ja:)http://www.blogger.com/profile/11748280561362458873noreply@blogger.com7