December 17, 2008

Going Gray Early? Is There a Link to Narcolepsy?

Narcolepsy is such a mystery. Some people think that it is an autoimmune disease. Check out this article about the connection between autoimmune diseases and having gray hair before the age of 30. Did any of you peeps with Narcolepsy go gray early? Here's the link, let me know what you think, ok?

Gray Hair Before Age 30 May Mean Health Risks...

Have a great day!:)

October 16, 2008

Long Term Effects of Narcolepsy - What Do You Think?

I have seen many articles lately about Narcolepsy, and it's symptoms and general information regarding this illness. One of the interesting things, to me anyway, are the differences in opinions about Narcolepsy and how it effects it's target. I have collected some opinions from various websites, and posted them below, with links, to see what you think.

Do any of these explanations seem accurate in your life? How does Narcolepsy effect you? I am so interested in the opinions of others on how Narcolepsy has changed your life. What is different since you have been effected by Narcolepsy?

Here are some snippets from various sites on the subject. The link to the actual website is included. Let me know what you think, OK?

Long Term Effects of Narcolepsy

From the website of Narcolepsy Network - Click here to go to site.
...
The consequences of narcolepsy may be many and far reaching. Sleep attacks and cataplexy in public are embarrassing and can cause serious social and economic difficulties. Cataplexy may interfere with physical activities, and efforts to avoid emotions may lead to social withdrawal. Inability to work and/or drive may result in loss of independence, financial difficulties and a multitude of other problems. In these situations, a person can easily lose touch with others and become depressed...
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The following text excerpts taken from SleepFoundation.org - Click here for the exact page
...The symptoms of (and some of the drugs taken for) narcolepsy may affect your sex life. Sexual problems, such as low sex drive and impotency, may result from severe sleepiness, depression, medications or cataplectic attacks. These problems, especially any resulting from a new medication or changed dosage, should be discussed with your doctor....


...Narcolepsy symptoms can also result in a change or loss of employment, physical restrictions and social withdrawal. Loss of self-esteem, learning difficulties and depression can result...
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Below are a few words from the Aurora Health Care site, from an article intitled "
In his own words: living with narcolepsy". The whole article is good. You can check it out, click here.

...
I've had to make many lifestyle changes. I had to give up my military career and change jobs. I only swim in shallow water. I'm still a heavy coffee drinker, just not three pots a day. I take regular naps, generally after lunch, around 4, and after supper. I can regulate when I need a nap. And by taking naps, I don't have to take as much medication. Since emotions can trigger cataplexy, I have to walk away from confrontational situations or I may fall over...
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At the website of Health Central, here is what they have to say about the emotional and social effects of Narcolepsy. Click here to go to the website.


...
The patient suffers emotional and social difficulties from the uncontrollable sleep episodes and cataplexy. Studies have reported rates of depression in people with narcolepsy ranging from 30 - 57%. (In the general population, prevalence of depression is 8%.) Studies have shown severe emotional and social dysfunction in all areas, including work, relationships, and leisure activities. One study reported that 25% of men with narcolepsy suffered sexual problems. Some experts believe that the psychological and social effects are more serious than those caused by epilepsy (which narcolepsy can be mistaken for)....

There are many opinions about the effects of Narcolepsy on one's life. We all have our own unique experiences and opinions. How does it effect your life? What area in your life that is effected by Narcolepsy do you find the most difficult to deal with?

I am really interested in hearing different experiences, and I would like to post some of them here, with your permission.


Well, everyone, have a great rest of the week, and oh yeah, have any of you seen the film "90 Naps a Day" yet? I got some interesting opinions from some of you who have seen it, and I hope to write a little about it soon. I haven't seen it yet, I am in the U.S, and I haven't found a way to see it, I have only been able to see some clips.



October 2, 2008

Scientists pinpoint genetic driver of narcolepsy

Scientists pinpoint genetic driver of narcolepsy- click here for a link

I have been seeing quite a few news articles related to this genetic discovery in the past week.


Scientists in Japan have identified a genetic mutation linked to narcolepsy. I wonder what this means for the future of those with this disease, and finding a cure or alternative ways of treatment. Pretty interesting stuff!

On a side note, I have been sleeping approx. 15 hrs. a pop/day, for about a week. Today, I woke up, and felt like I had energy. I forgot what that felt like. I will NEVER take any energy or "good" days for granted! Oh what a great feeling it is to feel like moving, reading, working, shoot, doing anything!!

How are all of you doing?

This puppy was at the gas station, and I had to take a pic! What a cootie bug poo!!!


September 19, 2008

Upside Down Rainbows, in the midst of mayhem...


WOW...

These past few weeks have been filled with mayhem, craziness, and odd happenings. So many things that have happened in the world lately have been devastating. From natural disaster to tainted products in China, hurting so many people. Please, don't forget, if you are a prayer-er (highly recommended here:)) to keep all of these people in your prayers, thoughts, and actions.

While reading the news today, I came upon, yet, another strange incident, but this time, it was beautiful, and a winner!

In the UK, Cambridge to be exact, a upside down rainbow was spotted, and captured by photo. Take a peek at the story here. Click here for the story and picture.

Wow. One commenter on the story mentioned "It looks like God's smile!". It is a beautiful thing.

Thanks God! I am sure that it really helped some people today. When I take the time to look at the beauty of nature, it seems to always put things back into perspective. I am so blessed. I thank God today for his mercy, and kindness he has given me. Again, I am so blessed.

September 7, 2008

Sara Palin, Pro life my a!@!

How could someone who proclaims to be "pro-life" enjoy killing animals so much?

Check out these links. If you choose to vote in this upcoming election, make sure you are as educated as you can be about all of the candidates. We must know all that we can before we vote!

Maybe you aren't a vegetarian, but is it really necessary to have a dead bear to sit your butt on? If you had to kill it yourself, would you still do it? How could killing an animal be such a badge of honor? Sickos!!!!

Nice Bear you are sitting on Ms. Palin....real nice.


Links:

Polar Bears not as important as oil

Check out her offical bio, especially the pics!

September 1, 2008

90 Naps a Day...

Hola peoples!

There seems to be a new film among us entitled "90 Naps a Day", a film by Firefly, exploring Narcolepsy. Click here for a link where I found this info, if you are interested.

I did a search, and cannot find any other info about this flick. Anyone know any other info about it? I would love to know more, or where I could see it.

I haven't written in a long time. I hope to be writing again, regularly now. Thanks to all of you that keep coming back and reading. I really appreciate it!!

Go Easy!

June 16, 2008

And Some People Think People With Narcolepsy are Dense!!!




You know,

Narcolepsy can make a person forget words, slur words, mangle words...you get the idea, right? In honor of all of my brothers and sisters in Narcolespy, I bring something new! Well, I have decided to offers my readers, (all 2 or 3 of you...LOL), a weekly game entitled,

"Who Forgot to Put on Their Thinking Pants" quote game. Here's the deal...

I will leave you a quote, and you try to guess who said it. There is one important rule however...you absolutely cannot look the quote up...No Google-ing, no web search, just your fresh brain matter, and who you think may have said the monstrosity that I post. Got it? OK. And the first person to guess the mess will get the prize. Except unfortunately, there really is no prize.

Well, there is sort of a prize. You will be listed as the winner!!!! Woooo Wooo!

So here it goes, Here is todays funky funktabulus quote; remember, no cheating!!

Who Said This:
"One reason I like to highlight reading is, reading is the beginnings of the ability to be a good student. And if you can't read, it's going to be hard to realize dreams; it's going to be hard to go to college. So when your teachers say, read—you ought to listen to her."

Happy Guessing! This one should be pretty easy!!!

God Bless,
and Go Easy,
Ja

Can You Hear Me Now?

Hey everybody! Holla if you hear me! Time for a revival up in here!

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