I took Xyrem for Narcolepsy about 5 yrs ago. I took it for I think about 6 months, although I may be wrong because those months are quite cloudy. Other than the face swelling, major anxiety, bloody hangnails, head thrashing, wanting to die and not being able to breathe through my nose, it was a pretty good experience...or not.
Over at the Zombie Research Institute, one of my favorite websites, Heidi L. has some great information about millions of things having to do with Narcolepsy and so much more.
In other very important news:
Patchy and Pudgy, the pigeons that
live on my balcony had babies!
They are so ugly that they are cute!!
They are so tiny! Don't you want to just squeeze them!!
20 comments:
Hello
I just found your blog and I am enjoying your writings. I have been dx'd with narco for five years now. My meds are not working. Thanks for all the good info!
Grace
Have you tried the gluten free diet?
Grace,
Thanks for the nice comment, and for stopping by! I am sorry to hear that your medicine is not working...I have been on the same meds for a long time, and they don't work well for me anymore either. Have you asked your doc for a change? Hope all is well, and hope you have a great week.
Via con Dios,
Ja
Sariahrose, Thanks for stopping by and commenting! Yes indeed, I am gluten free...How bout you? If so, how has it helped you? For me, it had helped a lot with excema and my hair health. I am really trying to cut back on the carbs though, to help more with energy. Any tips????
Thanks, Via con Dios,
Ja
Sweet site, I had not come across narcolepsy-daily.blogspot.com before in my searches!
Keep up the fantastic work!
Thanks for sharing this link, but unfortunately it seems to be down... Does anybody have a mirror or another source? Please answer to my post if you do!
I would appreciate if a staff member here at narcolepsy-daily.blogspot.com could post it.
Thanks,
Charlie
Charlie, I just checked all kinks in this post and they are working fine here. Sorry I took so long to reply. Hopefully you can try them again.
Via con Dios,
Ja
Ja! How did I not know you have a narco blog???!!! So glad I found it...hope all is well :-)
narcoleptically yours,
Narcogirl ;-)
ha, I am going to try out my thought, your post give me some good ideas, it's truly amazing, thanks.
- Thomas
Hola Narcogirl!!
I am glad that you found my blog!! I love yours! Nice to see you and take care!
Via con Dios,
Ja
Thomas,
Thanks for your positive comments, they mean a lot to me! I am glad that you find the blog useful.
Via con Dios,
Ja
Hey,
Thanks for sharing the link - but unfortunately it seems to be down? Does anybody here at narcolepsy-daily.blogspot.com have a mirror or another source?
Cheers,
William
William,
Thanks for reading! I just checked the links in this post, and they seem to be working fine. If you are still having trouble, please comment back and let me know which link is not working for you. Happy holidays and thanks again!
Ja
This short article offered me a fantastic thought about this matter. Fantastic efforts. Thanks
My spouse and i ascertain this data really important. Many thanks for the precious data along with insights you've so furnished on this page. Keep it up!
Appreciate your supplying these kind of really helpful tips. Good job on as an outstanding blogger.
As a brand-new blogger I found this informative article quite handy, appreciate your posting about it
I like it when folks get together and share views. Great website, keep it up!
I wish Xyrem had worked for you. It has done wonders for my son.
Hi there, I live in the UK. been diagnosed since 2001. I was on xyrem for 6 months too. facial swelling, deep very dark eyes, sleepwalking and my blood pressure went through the roof. I looked about 15yrs older after taking it for 3 months.
Post a Comment