Good day everyone! I remember a couple of months ago looking at a site that different people had posted some things in a blog type format, about having Narcolepsy. I just checked It out again, and it has a lot more entries from many different perspectives! On the site it states;
"If you've got something to say about sleep disorders
you can say it here. Prose, poetry, photography;
whatever form of expression suits you
best (within reason). Please email your contribution
to (email is listed at the actual site) with the
subject line "We are not lazy". Please include
best (within reason). Please email your contribution
to (email is listed at the actual site) with the
subject line "We are not lazy". Please include
your name (or a pseudonym), age and location."
Even If you don't want to add to this really cool blog, make sure you at least go check them out!! It is really nice to be able to read about how other people feel, and what they think about Narcolepsy. Just CLICK HERE or up at the title of this entry to check out the blog called "We are not lazy".
Hope you all had a great weekend!
5 comments:
I have something to say. I enjoy reading your blog. Keep up the good work.
Thank you Jaredd!
Thank you for this website, I am nearly 70yrsold and not accustomed to doing this but I relate to you. You know what most people (incl drs) on this planet do not know. I hope you continue. I was diagnosed at age 34 after testing at Montefiore Sleep Center when I began collapsing to the ground with cataplexy. But the actual onset of narcolepsy symptoms began when I was 12 yrs old. This is a most insidious disorder. JoH
Thank you for this website, I am nearly 70yrsold and not accustomed to doing this but I relate to you. You know what most people (incl drs) on this planet do not know. I hope you continue. I was diagnosed at age 34 after testing at Montefiore Sleep Center when I began collapsing to the ground with cataplexy. But the actual onset of narcolepsy symptoms began when I was 12 yrs old. This is a most insidious disorder. Jo
JOh,
Your words really mean a lot to me. Thank you for leaving a comment and I am glad that you are here reading my blog. Yes, it sure is an insidious disease, really I can't even begin to put into words how it effects one's life. You mention Montefiore Sleep Center...Do you still see a doctor there, or another?
Thank you again!
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